Changes in DSM-5 Autism Definition Could Negatively Impact Millions

Salem-News

"The autism community strongly recommends that the proposed DSM-5 autism spectrum disorder diagnostic criteria be revisited with these concerns in mind," - Sallie Bernard, President of SafeMinds

(WASHINGTON, D.C.) - Proposed changes to the diagnostic criteria for autism spectrum disorders in the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders – 5 (DSM-5) will potentially disrupt appropriate and necessary services to hundreds of thousands of individuals in the US, hamper the ability to track the numbers of people with autism, and interfere with efforts to establish biological causes of autism.

“The proposed criteria make it significantly more difficult to qualify for an autism spectrum diagnosis and they completely eliminate the categories of PDD-NOS and Asperger’s Disorder,” stated Wendy Fournier, National Autism Association President. “In a well-intentioned desire to improve the specificity of an ASD diagnosis, the new criteria may, in fact, go too far and create unintended consequences. It is critically important that any diagnosis address all the symptoms of an individual and allow them the supports they need.”

The new criteria, rationale and previous criteria are available at: http://www.dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=94

Currently, the federal government is spending millions of dollars to track prevalence of ASDs in 11 states; the 2000 birth cohort is due out this year. The Individuals with Disabilities Education Act (IDEA) requires schools to report the number of students with autism annually. Both sets of data have shown dramatic increases in autism spectrum disorders. One in 110 children in the US is now affected by autism compared to one in 10,000 in the early 1980’s. By significantly changing the criteria for diagnosis, the new DSM-5 will impair the ability of public health officials to compare future rates of autism spectrum disorders to past rates, since the definition will have changed. Accurate projections of trends in autism rates are critical to planning educational interventions, Medicaid and adult services. 

"By analogy, if the medical community chose to only count melanoma in the future instead of all types of skin cancer, it would look like skin cancer rates had gone down, even though other types were still present and needed treatment,” said Ginger Taylor, Canary Party Executive Director.

In addition, incidence and prevalence are critically important to investigating environmental causes of autism. “Toxic exposures to the general population change over time and having good consistent epidemiology allows researchers to judge the likelihood of a toxin being involved in autism,” stated Eric Uram, SafeMinds Executive Director. “The APA’s new criteria should add a specific mechanism to map the old diagnoses onto the new ones in order to allow researchers to compare new and old datasets. We also would like to see the APA address the issue of regressive autism by including age of onset as part of the criteria. The etiologies of infantile vs. regressive autism may be entirely different, but the new criteria do not distinguish them in any way.”

A primary concern for parents is the likelihood that many children on the autism spectrum may not be diagnosed under the new criteria, thereby depriving them of appropriate early intervention and treatment. 

83 percent of brain injury vaccine compensation payouts were for autism caused by vaccines

By  Neev M. Arnell - NaturalNews -

The federal government has been publicly denying any link between autism and vaccines for over two decades, while it has quietly been paying out damages for vaccine injury to children with autism, a study released May 10th shows. The study underscores the need for Congressional hearings and independent scientific research into the connection between autism and vaccines (http://www.news-medical.net/news/20…).

The federal government’s Vaccine Injury Compensation Program was created in 1989 to act as a “no fault” taxpayer-funded alternative for those seeking compensation for proven vaccine injury. The new peer-reviewed study, published May 10th in the Pace Environmental Law Review, looked at cases of vaccine injury that have been monetarily compensated by the VICP. The study looked at 1300 cases of children with brain injury resulting from vaccines where the court’s records referenced autism, symptoms of autism or disorders commonly associated with autism — twenty-one cases outright stated “autism or autism-like symptoms” in the court records. The researchers then identified and contacted 150 of the families that were compensated to find out whether the children had autism. 62 of the families they contacted (greater than 40 percent of their sample) reported children with autism, for a total of 83 cases of autism. (http://www.prnewswire.com/news-rele…).

“What we did is we looked at the people who the government said are clearly vaccine injuries and awarded them compensation,” said Lou Conte, the vaccine compensation recipient who helped coordinate the study.

“We asked the next question and that question was: Do some of these people also have autism?” said Conte. “We found that in 83 of the cases we were able to locate, the families report that their children have autism and symptoms of autism.” (http://www.myfoxdc.com/dpp/health/n…)

Government and conventional medicine maintain denial

The CDC has since released a statement supporting their previous statements that no link between vaccines and autism exists. (http://www.myfoxboston.com/dpp/morn…)

Some medical experts agree. While the stories are heartbreaking, said Dr. David Nelson chair of the Department of Pediatrics at Georgetown University Hospital, there is no connection between vaccinations and autism.

“There are absolutely no data that show autism is linked to vaccinations,” said Nelson. (http://www.myfoxdc.com/dpp/health/n…)

The Health Resources and Services Administration, the Federal agency responsible for improving access to health care services for people who are uninsured, isolated or medically vulnerable, also put out a statement in response to the new study stating:

“The government has not compensated any case based on a determination that autism, in the absence of acute neurological illness, was actually caused by vaccines. Furthermore, there is no reliable scientific evidence that vaccines cause autism even in cases where an acute encephalopathy following vaccination has occurred.”(http://www.myfoxdc.com/dpp/health/n…)

Critics argue for further investigation

The Huffington Post asked Elizabeth Birt Center for Autism Law and Advocacy, whose board members authored the study, why anyone should care about the legal proceedings of some obscure court when so much published science says otherwise.

The EBCALA argued that the government officials in Health and human Services or the VICP who decided that the children in this study suffered vaccine injury did so based on science.

“We uncovered that these children also have autism. How can the government then continue to assert that there is no link between vaccines and autism?” said EBCALA directors, “If in fact there is no link, why would there be even one case of vaccine-associated autism, let alone 83?”

Authors of the study called their preliminary findings “the tip of the iceberg,” during a press conference in Washington May 11th.

Hundreds of autism cases have been settled quietly by the government, they say, while thousands more were probably never filed, according to News Medical. There are currently over 5,000 court cases pending that claim autism as a result of vaccine injury. (http://www.news-medical.net/news/20…).
“The [VICP] appears to favor cases without any reference to autism,” said National Autism Association President Wendy Fournier. “The message is clear, if you want to receive financial support for the long-term medical care of your loved one injured by vaccines, submit a claim for brain damage, or residual seizure disorder – but leave autism out of it.”

NAA believes the findings of the new study call into serious question the continued assertion from federal health agencies that vaccines do not cause autism.

“As this study shows, vaccines can and do cause brain damage and subsequent autism in certain children,” said Fournier. “The government has been settling these cases for over twenty years, yet has failed to conduct research into why these children were susceptible to vaccine injury. This neglect will continue to needlessly and senselessly result in adverse reactions and autism in other children.”

Call for congressional hearings

“Congress needs to find out whether there was a cover-up,” said lead author and managing director of EBCALA Mary Holland. “It doesn’t look good.”

SafeMinds says the government has asserted that it “does not track” autism among the vaccine-injured. SafeMinds is a nonprofit that aims to raise awareness, support research and focus attention on the growing evidence of a link between mercury and neurological disorders such as autism, attention deficit disorder and learning difficulties.

Not looking is the easiest way not to find something, said SafeMinds, so the organization is calling for immediate federal research into the mechanisms of injury in these children in an effort to protect other children from harm and Congressional action to reform the VICP.

“This study dramatically shifts the debate on autism and vaccines,” said SafeMinds’ Executive Director, Lyn Redwood. “The question is no longer, Can vaccines cause autism? The answer is clear. Now, we have to ask, How many cases of autism have vaccines caused and how do we prevent new injuries from occurring?” (http://www.prnewswire.com/news-rele…)